Friday, November 18, 2011


i am feeling a little bipolar right now... i am a gemini- the twins... very fitting.  i certainly feel like different people at different times... maybe i am thinking of schizophrenia and not astrology... nah, i am sticking with the twin thing. :)

today i had my first PET/CT scan & my first MRI... lucky me.  i had to fast for one of the tests... to be honest, right now i cant remember which one.  its been a long day... back to the testing- the pet/ct scan is kinda like a geographic map of me... the technician said they scan my entire body, and the dye should locate any cancer... this was actually the last test i did today.  the first was a mri-wo-w (thats how it was written on their forms- i couldnt stop thinking that wow was ironic... even tho i knew it was intended as without contrast then with).  but they performed the mri on my brain to make sure it is cancer free.  and that machine is noisy! but since i grew up in a beach/bar town in san diego i have learned to relax even with loud obnoxious noises around me... a trick that came in handy in that machine... at one point it sounded like it was saying "twirly" over and over again... another (keep in mind i just finished school for motorcycle mechanics) it sounded like a loose cam chain, then valve float... oh! i almost forgot the best part about that noisy machine... since they were scanning my brain they strap my head in... i am not claustrophobic, but plastic mask-ish thing inches from my strapped in head was a little odd.  not to mention the fun of being stuck, not once, but both tests... and the mri "stuff" they injected tasted metallic and gross... the pet/ct "stuff" stunk like acetone (nail polish remover)... both techs said most people dont notice those pleasant side effects.  why am i always one of the lucky ones?

since next week is thanksgiving i have to wait til the week after to follow up with my dr.  that is when we will discuss treatment options... so far the only thing she has mentioned is interferon.  i dont like that idea.  but i guess we will see once we have these results.  maybe i am fortunate and they removed the mets when it was discovered... and that is the glimmer of hope i am trying to grasp onto right now.  the wait is gonna be rough tho... i hate not knowing- always have. 

then there is the bipolar feelings about that group Girl Talk... i wrote about in previous post by same name.  i really, really want to talk with them... but they meet thursdays at lunch.  my hubby works with my sons class kinder-garden at that time.  and i kinda want to know what is going on before talking with them.  it is just proving to be such a challenge right now... very frustrating because i see this as a chance to help spread the word, i just cant seem to actualize it now. 

back to the treatment ideas... i was talking to auntie tiger about everything (as usual)... of course treatment was one of the topics... and i told her i would rather agree to be a guinea pig for a trial than choose something i already know doesnt have the greatest track record and WILL make me sick.  i hadnt been able to put that into words prior to that conversation.  again, it doesnt matter right now... i need to wait for scan results in about 2 wks before we discuss any treatment.... have i mentioned how i hate waiting? :)

half the time i know i am repeating myself... the other half, please just bare with me... i wasnt exactly all here to begin with, but stress is not helping.  i get stress headaches, always have... but that is one reason the brain scan.  the other reason, is memory loss... but stress does that too - you obsess on, or freak out about something and everything else gets lost... i used to be so good with numbers, i could always remember appts, dates, phone, numbers, etc... now, ha! no more...

to me its crazy how everything is so cyclical... and by that, i mean these scans are just a portion of this journey so far... but a necessary step to move along to the next step... to me, that is cyclical because it feels never ending... and if i think circles, i think infinity... i think of the way my mind works in the first place.  alright, i think i am repeating myself again... time to go to bed for tonight...

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